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The senior care blog shares practical tips and advice for senior care success. 

It is hosted by Matt Johnson, a senior care advocate and our CEO here at HealthBridge. 

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Inspiration from a 54 Year Old with Alzheimer's Disease

Posted by Matt Johnson on Tue, May 11, 2010 @ 09:00 AM
  
  
  
  

Alzhiemers Disease Bill BridgwaterBill Bridgwater doesn't look like he has Alzheimer's Disease. 

He's young - just 54 years old.  He's sharp too, shining with the the polish of his Fortune 500 pedigree.  He's not confused and he doesn't appear disoriented or forgetful.  

But, he does have Alzheimer's Disease.  He's had it since he was 48 years old. 

This MIT educated executive learned about his diagnosis at the height of his professional career.  Then, he did something totally different than most people who have early onset Alzheimer's Disease.  

He leaned in.

We all fear Alzheimer's.  We fear losing ourselves to a disease long before we die.  We fear how our friends and colleagues will judge us if they believe we've become "senile."  We fear the burden we will cause for our loved ones.

Maybe that's why we run away from Alzheimer's Disease.  

Bill didn't run. 

He was the first individual diagnosed with the disease to serve on the national board of directors of the Alzheimer's Association.  He's also become a nationally recognized advocate and speaker on Alzheimer's Disease.  

He spoke to a gathering of the Greater Dallas Chapter of the Alzheimer's Association last week.  As he shared his emotional journey with Alzheimer's Disease, he shared one point that has resonated with me ever since.  He said:

Alzheimer's Disease is something that I have, not who I am.

I will forever draw inspiration from those words.  As I watched my grandparents' minds slip away, it became hard to separate them from the disease.  But, it was something they had, not who they were.  

I've written a lot about what makes good caregivers great.  When it comes to Alzheimer's care, I think Bill's advice can sum it up.  

Great caregivers know that their clients have Alzheimer's Disease, but it's not who they are.  Great caregivers treat the disease, but care for the client by remembering who they are.  


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COMMENTS

Isn't it strange that we easily apply Bill's quote to other diseases - but not to Alzheimer's! 
 
Nice quote.

posted @ Tuesday, May 11, 2010 10:06 AM by Stella


You're right, Stella. We're never really asked to lean in to an illness when it affects our mind. Hopefully Bill will change that. 
 
Thanks for reading and commenting!

posted @ Tuesday, May 11, 2010 10:20 AM by Matt Johnson


You're right, Carlyn. Bill is inspiring.  
 
Thanks for reading and commenting.

posted @ Tuesday, May 11, 2010 5:40 PM by Matt Johnson


This statement reminded me of my mother at the height of her disease. Some of her actions were disheartening and frustrating for us, but I always came back to the memories of who she was as we dealt with what she had.

posted @ Tuesday, May 11, 2010 5:49 PM by Jack Case


Thanks for sharing that, Jack. I'm sure your experience with your mother has made you a better long term care planning agent too.  
 
Thanks for reading and commenting!

posted @ Tuesday, May 11, 2010 8:19 PM by Matt Johnson


Very cool story!

posted @ Sunday, May 16, 2010 8:47 PM by sara


Thanks, Sara. A cool story, indeed. We're all hopeful that Bill's message will inspire.

posted @ Monday, May 17, 2010 10:03 AM by Matt Johnson


You're right, Jane. Bill's story is truly remarkable.  
 
Thanks for reading and commenting!

posted @ Monday, June 07, 2010 4:03 PM by Matt Johnson


Great point, Taylor. You're right - Bill's story is inspiring! 
 
Thanks for reading and commenting.

posted @ Thursday, June 17, 2010 2:08 PM by Matt Johnson


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